Wednesday, March 28, 2012

Day After Right Temporal Lobectomy

Today is day 2!  Yesterday Devynne had a Right Temporal Lobectomy, her doctor removed her right Hippocampus and her right amygdala.  Doc said the surgery went very well, lasted about 6 hours.  She was moved into her ICU room around 645 lastnight.  Woke up a little around 930 lastnight and tried to drink a little...that wasn't a good idea, she started throwing up.  They removed her cathitor at that time and she said she had to pee so they let her get up out of bed.  She did pretty good, got sick on the toilet.  Slept pretty much through the night (with the exception of the nurses and doctors waking her up).  This morning she looks a bit swollen in her right side of her face but still doing pretty good.  Doctor and Occupational Therapist says she looks really good.  Hoping to move to a regular room later this evening.  Still a long road ahead!!

Sunday, March 4, 2012

Update

Well, we are a few weeks post procedure... the doctor was able to narrow down her seizures to her right temporal lobe.  At first we weren't so sure where because within milliseconds after the seizure started it exploded to the rest of her brain but most of the activity stayed in the right portion.  She is a surgical candidate and will be undergoing her Right Temporal Lobectomy on 27 March.  The surgeon said he is going to take out her Hippocampus and something else but can't remember.  She will be in the hospital for 2-3 days (yes that's it), she will be in ICU for the first day then moved to a regular room for the remainder.  After that she will be out of school for 6-8 weeks (which is the rest of the school year).  She's been doing pretty good!  The double vision has been pinpointed to her medication and since lowering her morning dose she's stopped having the double vision.  Now it's just prep for the surgery.  I'm getting pretty nervous because the Hippocampus controls your long term memory and your emotions.  I've made a memory book on the recommendations of a guy at work that had the same surgery.  He said that he lost the last year of memory but it only lasted a few weeks.  Hopefully this won't happen but just in case I'd like to be prepared. 

As always, thanks for reading and please keep Devynne in your prayers!!  Will post more as we get closer.  If anyone has any questions they'd  like answered please let me know.  If anyone has any suggestions, please send them.  Going to a support group on Tuesday, hopefully there will be a lot of people there that can help both of us out!!